Privacy policy
The MS Peer Research website is operated by squarespace. The privacy of our website users, who collaborate with us as peer researchers in our study and those who take part, is highly important to us and therefore we encourage all users to read our Privacy and Data Protection Policy Statement. This policy contains important information about:
Who we are.
What personal information we collect about you and how we use them and store them.
Your rights in relation to your personal information.
Security and protection of your data.
How to contact us if you have a concern or complain about how we deal with your data.
Who we are:
Our website, www.mspeerresearch.co.uk , collects, uses and is responsible for storing certain personal data about you as our website user.
The personal information we collect and use:
Personal information is information which you can be identified from and does not include any anonymised forms of information.
Types of personal information we collect:
Our contact forms include information so we can communicate with you about news, forthcoming events, study updates and MS research which you may find helpful or useful to you as a person living with MS. We may possess the following personal information about you that we may have asked you to share with us:
Name
Contact number
Email address
Please be aware that this may not be an exhaustive list and we might ask you to share with us other types of personal information.
We would like to let you know that we never share your personal information with any other third parties or other ‘data mining companies’. We will never ask you to share any personal information that you do not like to share voluntarily.
How personal information is used and stored:
In general, your information will be processed to for the purposes of contacting you about our MS peer research study. Your personal information such as your email address will not be share with any other third parties. Your email address is stored in our website database.
We collect information from people interested to participate in and/or hear about our MS peer research study by filling in a contact form. Our website contact form have first name, last name, email address and contact phone number fields marked as required. If you fill in this form with these personal details we will contact you by email and/or phone for the purposes stated above. Your personal information such as your name, contact number and email address are stored in a digital database and kept in a Queen Mary University of London Computer and in a secure and encrypted SharePoint folder.
If you are receiving emails from MS Peer Research this is because you have signed up to hear study updates and relevant news. You may have put your contact details in the contact form in the Contact section of the website.
Your rights:
Under the UK General Data Protection Regulation (GDPR) you have a number of important rights which include:
Right to be informed: by telling you what personal data is being collected, how it’s being used, how long it will be kept by us and whether it will be shared with any third parties.
Right of access: You have the right to request a copy of the information that we hold about you.
Right of rectification: You can require us to correct any mistakes in the personal data we hold about you.
Right to be forgotten: in certain circumstances, you may ask us to erase any personal data stored in our databases about you.
Right of portability: in some circumstances, individuals can request that an organisation transfers their personal data to another company.
Right to restrict processing: in some circumstances, you can request to limits the use of personal data.
Right to object: You have the right to challenge certain types of data processing of your personal information with other third parties.
Rights related to automated decision making, including profiling: in most circumstances, you have the right to object to activities where automatic decisions are made based on your personal data which produce legal effects concerning you.
For further information on these rights and the cases in which they may apply please refer to the UK General Data Protection Regulation (GDPR) guidance on your rights using the following link: https://www.gov.uk/data-protection
Changes to the way we collect your personal information:
In the event we need to collect your personal information in different ways than the ones stated and described in this policy document then we shall notify you of this by email.
Security and protection of your data:
We use tools supplied by trusted third party companies that are committed to high levels of security and encryption. All technology is kept up-to-date in as reasonable time-frame as possible.